The Scottish Renal Registry



About the SRR


History

Nephrologists in Scotland have always collected epidemiological data. Initially, a small data set which was sent to the European Renal Association- European Dialysis Transplant Association (ERA-EDTA) registry. Data from Scottish renal units are available back to 1960 which is the year regular and routine renal replacement therapy (RRT) for end stage renal disease (ESRD) started in Scotland.

Funding

In 1991 the committee of the Scottish Renal Association established a computer based registry for patients receiving RRT for ESRD in Scotland. The registry was set up with a grant from the Clinical Resource and Audit Group (CRAG) of the National Health Service in Scotland (NHSiS). Since then the project has been funded for a period by a grant from Scottish Health Boards. In April 1999 overall responsibility and funding for the registry was transferred to the Information Services Division (ISD) of the NHSiS.

Structure

Each renal unit elects one consultant nephrologist to serve on the SRR steering group which meets twice a year. A smaller executive committee operates by email and phone. The members of the Executive are all on the SRR steering group. All major decisions including initiating new projects and releasing data to third parties are taken by the steering group with whom communication is maintained by email and post. The SRR operates under the auspices of the Scottish Renal Association. The SRA and the SRR are affiliated to the ERA-EDTA. A report on the activities of the SRR is presented to a half day academic meeting of the SRA every Spring.

Organisations on which the SRR is represented

1) The UK Renal Registry

2) European Renal Association - European Dialysis and Transplant Association (ERA-EDTA ) Registry

3) The Scottish Parliamentary Cross Party Group on Renal Diseases

4) The NHS Scotland ISD Working party on data sets definitions

5) The NHS Information Authority working group on "Specifying Clinical Term Sets for Information Requirements" (SPECTRE)

6) The UK Renal Association Renal Information Exchange Group

SRR Aims and Objectives

Download Aims and Objectives Download the Aims and Objectives of the SRR as a pdf file [62Kb] of the Scottish Renal Registry.

SRR National Clinical Audit Standards

Download the National Clinical Audit Standards Download the SRR National Clinical Audit Standards (2021) as a pdf file [359Kb] of the Scottish Renal Registry.


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